Meet the new hair...

So, it's my birthday, and I got myself a wig.

Well, actually, I returned a wig and bought a new one, both mail order. The original one didn't look all that great when I got it: I didn't like the color, and it was too long. It made me look like that snobby girl in Sixteen Candles (you know, the snob who was dating Jake Ryan and ended up with Farmer Ted), and all I could think was that Jami Gertz was going to come and snip half of the back of it off. Ultimately, my Pooh Bear ended up wearing it until I finally got around to sending it back. It looked about as good on him as it did on me.

For a while I figured I'd just be brave and go without hair for a couple of months. The scarves were working pretty well, and since the weather is turning cold anyway, it would be easy enough just to wear hats I already have, when appropriate.

A few things changed my mind.

First off, as flaky as this might sound, wearing the scarves has been limiting my wardrobe. While I'm not the biggest fashion plate, it bugs me when stuff doesn't go together. As a result, I've been wearing a lot of black. And while scarves look good with certain tops, they don't look great with polo shirts, which I tend to wear fairly often when I need something a little less informal but still casual. With them, scarves tend not to look like a fashion choice, but a necessity.

The bigger reason: I don't feel like standing out anymore. Or, more accurately, if I'm going to stand out, I want it to be for a reason of my choosing, not something thrust upon me. It'll be another six months before my hair is anywhere close to normal again, and I don't think I can manage a stiff upper lip for that long.

An incident in a restaurant the other night really capped it for me. Admittedly, I was already not in the best of moods - the place was more crowded than usual, and while we'd hoped to see the last couple of innings of the ballgame where the Mets were clinching the division, we ended up at a table with only a partial view of the TV. And the screen was tuned to the Yankees postgame. (Insult on injury, right?) The SO very kindly got management to change the channel, so I got to see the end of the game.

We had to wait a bit longer than usual for our meals, given the crowd, but the table bread kept me from getting hangry (I didn't want to chance the salad bar because I knew my immunity was tanking six days after chemo - salad bar sneezes could pose a big problem,) We finally got our food and were probably about halfway through eating when the couple at the table next to us got up to leave.

The woman stopped, apologized for interrupting and told me she hoped my treatments were going well. Her mom is going through the same thing, she said, so she wanted me to know I'd be in her prayers. I gave her the two-minute speech on my situation, and she said her mom's case is similar. She went on for a minute or two longer and then left.

That pretty much killed the evening. Don't get me wrong: she was tremendously nice, and I appreciate her good wishes. Maybe if I was in a better mood, it wouldn't have annoyed me the way it did. Thing is, I don't want to always have to be generous with my moods. I just don't want to be the target of reactions all the time. I want to control how and when people find out. I don't want to be forever reminded that I'm going through this extraordinary thing. I get enough reminders without the feedback. I just want to blend in.

The SO and I also have a charity dinner to go to next week, which I'm hoping I'll feel ok enough to attend. I seriously considered doing the turban thing, even trying a scarf wrap with a little black dress, which looked fairly okay, maybe a little Norma Desmond-y. Given the self-righteousness of some of the people I knew I'd run into (long story), I almost wanted to create an opportunity for comment, just so I could shove their self-righteous crap in their faces.

Chemo? You think I look sick?

But I realized I don't want to deal with the inevitable comments, even the benign and caring ones. I'd rather just have hair.

And fortunately the new wig arrived yesterday, my early birthday present to myself. True to the photo in the catalog, it looks pretty much like my last normal hairstyle, just slightly redder hair. Folks who haven't seen me in a while are likely not to even notice, as long as they don't look that closely. And really, who looks that closely?

Nobody. That's right.

Week eight starts!

Made it another week through... and one of those kinds of weeks I've come to expect won't be much fun.

Last we checked, I was taking the anti-nausea drugs to see if I could get through the days after chemo infusion with a minimum of barfiness and overall weariness. The good news is that I got over the hump by taking the drugs until Friday. The not so good news: the weariness remained. I guess there's only so much you can expect.

Week Seven -- yay!

Yesterday started week seven on the chemo journey, and all is looking good. My blood test results came back fairly good, with most of the "misses" being fractionally outside of the normal range. My doc is pretty satisfied with where I am.

Feeling pretty good about everything, I asked the big question: is there a chance that I'll continue to do fairly well over the next three rounds? She seems to think so. I'm not considering it a guarantee, but it does give me some hope. Maybe I'll get the hang of this routine.

Yesterday's chemo infusion was number three of six, had good chats with the infusion nurse and the nurse navigator, who always stops by to say hello and check in. Looking to prevent a redux of the icky feeling a few days after the last round, I asked the infusion nurse about the protocol for taking the anti-nausea drugs I was prescribed after the first round of chemo. There are two -- zofran, which is the preventative they give me in a drip before dosing me with the chemo; and compazine, which nails any sudden nausea. At least that's what they told me. She recommended taking the zofran right up, and if I need it, add the compazine.

I woke up kind of queasy this morning, so I started the zofran. My gut is still a little "different" but I've been able to eat just fine, with no nausea. I'll keep taking it for a day or two, see what happens. If I can avoid feeling totally crappy later in the week, I'll be happy.

Some great mysteries of chemo (hair edition)

Today starts my seventh week on this chemo regimen, and I've been collecting various observations on the mysteries surrounding the side effects of this whole process. I could tell you about the gastrointestinal stuff, but rather than grossing you out, I'll go for the easy part: the hair.* Here we go:

• I got a buzz cut three weeks ago, yet I continue to see long hairs in my bathroom sink. Where do they come from?
• Along those lines, I no longer have a cat. I no longer have much hair. WHERE ARE THESE DUST BUNNIES GETTING THEIR FUR????? Is there some sort of Hair Fairy that visits chemo patients?
• Why is it that the gray hairs are the ones that are most persistently staying in my scalp?
• Okay, I'll hit one gastro issue: why does Cafe Bustelo work when laxatives don't? (Not that I'm complaining, mind you.)
• Back to that gray hair: why is it that it seems to be showing most prominently in the center of my scalp? I feel like that unfortunate black cat who knocks over the can of white paint in the Merrie Melodies cartoons, only to be relentlessly pursued by Pepe Le Pew.

I've considered asking my oncologist, but I think she's full up on my silly questions for now.

* To be honest, the digestive/gastro stuff hasn't been too awful for me. Not yet at least. Kinahora. 

The other day I had occasion to clue someone else in on what's been going on. I'd told her about the surgery before it happened, but realized I hadn't followed up with news about the follow-up treatment.

As I've mentioned, it's always interesting to see where the information takes people. This response just blew me away:

"Glad to hear that the surgery was successful and it is amazing to me that you are being treated for something that just a few years ago they wouldn’t have even known to check for (or had the ability to check). Simply amazing."

How cool is that? And, of course, she's right. So much research has been done, and so many new treatments have been developed, and more are being discovered every year. One perspective might be that the more they discover, the more they can tell you what's not treatable or likely to recur... but I prefer to think about the other end: you can't deal with what you don't know.

In any case, it's awfully nice to have people out there who can see the positives.

It continues...

Went in for a toxicity check yesterday, told the doc I've been feeling pretty good, and shared my suspicions that they didn't give me all the stuff I was supposed to get with the last dosing.

She laughed, looked at my blood test results and told me my numbers prove they did.

So that's that. Let's hope the next cycle works out as well. Maybe there's something to the practice of getting some nutrition when I'm still feeling crappy. Just for the record, forcing down a bottle of Ensure when you're not in the mindset of eating solid food? It appears to work.

Surprisingly good

It's getting close to the end of week five of chemo (13 to go, yay!), and I'm feeling surprisingly good. I've got the sniffles and a little bit of a sore throat, which are the expected byproducts of a reduced blood cell count, and the lower intestines are being a bit fussy (no more need be said), but other than that, I'm feeling decent. Appetite is good and I've been able to eat pretty much what I want (Taylor ham, egg and cheese burrito!), though I'm still avoiding red meat that may taste metallic. I've got good energy.

Somewhere between seven and 14 days after each treatment, my immune defenses take a hit, and if my temperature goes above 100.2, I need to call the doc for evaluation and a possible shot of something called neulasta to boost white cell production. I've been taking my temperature several times a day during this week, as I did during week 2 of the last cycle. Where I saw some elevation (never above 100) last time, this cycle has been near normal every time.

I'm really beginning to wonder if they gave me everything I was supposed to get this last time around.

Regardless, I'm not taking anything for granted and am appreciating feeling decent.